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Kristen's avatar

I guess I will chime in as a contrarian voice in this comment section. I was diagnosed with autism a few months before my 50th birthday and it clarified so much for me -- it was like I was finally handed a map that accurately depicted the terrain of my life. Rather than feeling pathologized by my diagnosis, I felt (and feel) liberated.

Dr. Taylor is right that the world frames single-minded focus, strong opinions, blunt communication, low tolerance for social niceties, and sensitive radar for injustice in women as something to be controlled, suppressed, or reframed as problematic. But that is precisely why my diagnosis mattered. It explained why I had spent 48 years running myself into the ground trying to camouflage these traits -- not because I was broken, but because I was expending enormous neurological resources doing something my nervous system was never built to sustain.

Not knowing I was autistic made me (and my children) vulnerable to exploitation and abuse. I spent nearly 50 years internalizing the belief that I could not trust my own instincts because I was "too sensitive," "too opinionated," or "too difficult." My diagnosis gave me the framework needed to understand that my instincts were sound all along and that the problem was never me. The diagnosis didn't locate the pathology inside me -- it named the mismatch between my neurology and a world that was never designed for it. My diagnosis finally allowed me to begin the process of inhabiting my own neurology without apology or shame. That is not pathologization -- it is clarity.

I am currently in the midst of a legal process to hold one of my abusers accountable. My diagnosis gave me two things I did not have before: First, it gave me retrospective clarity that what happened was not a failure of my character or my judgment -- it was the result of someone recognizing vulnerabilities in me that I could not yet see in myself and exploiting them. Second, it helped me recognize that I had the backbone to fight back. The very traits Dr. Taylor worries are being pathologized -- my single-minded focus, my pattern recognition, my blunt communication, my lack of deference to authority figures, my sensitivity to injustice -- are exactly what I am using to do the hard work of making sure he is held accountable. A diagnosis did not neutralize my resistance -- it funded it.

Carrie's avatar

I think this is really important. I fell down this rabbit hole too and genuinely questioned myself for a year or 2. I took some autism screening tests which suggested I would be diagnosed with Level 1 Austism (aka aspergers) if I were to pursue it. But, the main issue I had about it was that all the things I liked about myself, all the traits I considered to be by best traits, were the ones that would get me the diagnosis. That made me stop and think what would be the benefit of having my best traits labelled as a disorder, would I want those treated? At that point I decided not to pursue it any further. Of course this is only my experience.

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